December 19, 2022
Winter set in with cold rain. The mountains just north of here are gray through a white mist. Blizzards are raging in northern and western parts, we get a raw chill. We put up the Christmas tree, we put up the lights along the eaves. We lit the Advent candles.
Two Sundays before Christmas, we stopped in at the monthly church pancake breakfast. The large hall, decorated with lights and wreaths, was filled with round tables with chairs for eight, a few people were seated. We picked up our pancakes and tiny pile of scrambled eggs and looked around. We headed for the table nearest the coffee stand. A woman sat there alone, sipping coffee.
We set our trays down a couple of seats away from her. I walked around. “Hi, I’m Ed Walsh,” I said. “This is my wife, Sandy.” She looked up and smiled. “I’m Danielle. Nice to meet you.” She turned back to her coffee. I poured syrup on my pancakes. “This is very nice,” I said. Danielle nodded. “Yes, they do a good job. My husband Tom is helping the servers.”
People were wandering in, the line for breakfast grew longer. Four older guys dished the pancakes, eggs, and grits. People with trays drifted to the tables throughout the hall, filling in the empty ones. A few glanced our way but passed on.
“This is a regular thing,” Danielle said. “We come once in a while.”
“Are you from the area?” I asked, pushing my pancakes around.
“We’re from Syracuse originally, but lived in Pittsburgh for twenty years. We’ve been here two years. We really think of Pittsburgh as our home town. So much life there, museums, culture.”
“It’s a great city, but it does get cold,” I said.
Danielle nodded. I guessed she was twenty years younger than me, maybe more. “Do you have family here,” I asked.
“My parents are here, they have a lot next to ours just outside Greer. I care for my mother, she has Alzheimer’s. She’s 85. My dad is 87, in perfect health. But he can’t, or won’t help much. They moved here to be near us, so I could care for her. So that’s what I do. I don’t get to many of these things.”
“She lives at home with him?” I recalled Sandy’s mom’s dementia. Before she went to assisted care she lived alone. She sometimes left the house and wandered the streets. Neighbors would call Sandy’s sister, who lived nearby, to take her home. Once she turned on the stove and forgot about it and nearly started a fire. After being admitted to the facility, she declined quickly. Within weeks she could not recognize her children. She passed eight years ago at 86.
Danielle looked away. “We asked Dad to find assisted care. He didn’t want to, but finally put her in a nice place. It had all the services she needed. But he didn’t like it. He said she was lonely. So he brought her home. He’s afraid of what happened to her. I do it all. Feeding, dressing, cleaning, bathing. He’ll help me lift her but that’s it.”
“What about other family,” I asked.
“We don’t have anyone else here. I have a brother in Syracuse. He’ll come down once in a while, if we want to get away for a few days. But if she has an emergency he can’t handle it. He’ll call and I’ll come back.”
“How is your mom?
“She’s late stage. She can’t move, she can’t really talk. I have trouble understanding her. I’ll have to leave in a few minutes. Dad can’t stay alone with her for very long.”

She glanced at me, then looked away, saying nothing. I wondered if she was thinking about her day: checking on her mom’s needs, listening, caring, dressing her, brushing her hair, and all the countless other little things that have become big things.
According to the National Institutes of Health, deaths from Alzheimer’s disease increased 145 percent between 2000 and 2019. The total cost in 2021 for health care, long-term care, and hospice services for people age 65 and older with dementia was about $355 billion. About 6.5 million Americans age 65 and older suffer from Alzheimer’s today. Barring medical breakthroughs, the number could rise to 13.8 million by 2060.
Sanjay Gupta, the neurosurgeon and CNN medical correspondent, in his 2021 book, Keep Sharp, says that 60 million Americans are caring for Alzheimer’s patients, more than twice the population of Texas. The deterioration of brain cells caused by buildup of destructive proteins, he writes, may begin for some in their thirties or even twenties.
In late November The New England Journal of Medicine reported on an 18-month clinical trial with a new drug, lecanemab, with subjects experiencing early-onset Alzheimer’s. The trial, in which 898 persons received the drug and 897 received a placebo, found “moderately less decline in measures of cognition and function” in those receiving the drug than in those getting the placebo. “Longer trials are warranted,” the researchers said.
But the drug showed serious side effects, including brain swelling, which forced some participants to drop from the trial. It’s given through an IV, meaning a visit to a doctor’s office. Large doses are required. So some modest good news, not a breakthrough.
We were strangers who strolled in for a quick breakfast. Danielle spoke quietly. “That’s my life,” she said with a little smile. For a few moments we said nothing. I looked up, her husband Tom took a seat between his wife and Sandy and me. We shook hands and introduced ourselves.
“Man, it’s dreary outside,” he said. “But it’s better than Syracuse. Last winter they had something like 60 straight days of cloud cover. I couldn’t take that. I like sunshine.”
“Me, too,” I answered.
Danielle finished her coffee. “I have to go,” she said. “Very nice to talk to you both.”
I watched her walk quickly toward the door, back to the rest of her life of giving to someone who may not know the person, her daughter, who had surrendered a part of herself for someone she loved, for no thanks, no recognition, but the certainty of love. And the love is all that mattered.
It occurred to me that Danielle’s life, her singular calling, her giving of herself to a deeply wounded person, enriched the lives of her father, Tom, her brother, and the rest of us. We can hope now that, when the time comes, and it likely will come, we’ll have our own Danielle.





